"Rare diseases are rare, but rare disease patients are numerous." The quote, originally from the Orphanet website, has always resonated with our blog author today, Tino Mudarikwa, who has lived with a rare disease all of his life: imperforate anus (IA) - one of seven conditions Global PaedSurg will be investigating. Growing up, Tino had always felt alone
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So far Marcus Sim has created 8 blog entries.
CARE and DHREAMS studies: an opportunity to enhance our genetic understanding of congenital anomaliesMarcus Sim 2018-06-11T02:15:04+00:00
Just as mutual collaboration begets mutual opportunity, Global PaedSurg would like to present a new exciting opportunity for all of our collaborators: to further contribute to improving global outcomes for congenital anomalies. The CARE (Congenital Anomalies Research Exploration) and DHREAMS (Diaphragmatic Hernia Research & Exploration; Advancing Molecular Genetics) studies are international studies examining the genetic mechanisms
This week, we have an incredible blog post from Greg Ryan, a man born 53 years ago with a congenital condition that should have killed him, had it not been for the incredible skill of his surgeons at the Royal Children's Hospital, Melbourne, Australia. Nevertheless, while the surgery gave him a chance at life, Greg
Dr. Nurudeen Abdulraheem presenting the results of PaedSurg Africa for the first time at the 47th World Congress of Surgery (Basel, Switzerland, August 2017) Contact with PaedSurg Africa I first came across PaedSurg Africa in September 2016 at the Pan African Paediatric Surgical Association (PAPSA) conference, Lagos 2016. The study protocol was
Miss Naomi Wright (third from the right) and Andile (centre) at the InciSioN Global Surgery Symposium (Leuven, Belgium, May 2018) "While standing in the immigration queue, third from the front, I caught a glimpse of the Incision IGSS invitation letter head as I was gathering my documentation for the immigration officers. Suddenly, I realised, this was
Dr. Theophilus Teddy and Miss Naomi Wright at the Global Initiative for Children’s Surgery (GICS) III Meeting (Vellore, India, Jan 2018) "It was an amazing experience being a collaborator for PaedSurg Africa last year. As a doctor, I learnt a lot in the process. Contrary to what I had imagined prior, it was remarkably easy
Have a growing interest in the far-reaching impacts of global surgery? Join us at the 2018 InciSioN Global Surgery Symposium in Leuven, Belgium on the 5-6th May! This exciting gathering will see a varied and global audience of specialists, residents and students, aiming to introduce the concepts of global surgery, its recent developments and future
While congenital birth defects have risen to become one of the top five causes of death in children under 5, perhaps the greatest injustice lies in the shocking statistic that 97% of those deaths occur in low- and middle-income regions. However, global collaborative research offers us the opportunity to change that, by studying the vast